Sunday, September 25, 2011

My Journey: 01

Hello everybody! I hope you are all doing well on this lovely Sunday afternoon (or whenever it is that you read this). I am just relaxing on my couch, with laptop propped on a cushion in between my legs. Mighty comfortable. Let's jump into the point of this entry... And let me warn you, it's a long one.

I had been trying to decide if this is something that I should share with you, if it needed to be shared, and if I felt 100% comfortable in opening up about it on here. But, I decided why not? I know how much I have searched on the web for someone to answer the questions that I had/have on the topic, and failed miserably. I kept getting medical journals, and old old articles. I hope that when another woman googles on this in the future, she bumps into my entries, and gets it from someone who's lived it. What am I talking about? I am talking about uterine fibroids.

My journey began in early August when I went for my papsmear (ladies make sure you're up to date with yours!) and my ob/gyn did a pelvic exam on me. She asked me "Have you ever been told that you have uterine fibroids?" And I said "No." She said that she wants me to come back and have an ultrasound, because she strongly believes that I may have some. I didn't think much of it, and didn't even care to research. I just thought that it was a fancy name for "cysts" which I believed to having, because of my heavy, weird and painful cycles. My doctor told me that she would be away on vacation, and to have the study done, and that she would discuss the results with me when she'd return. Six days later I was back in the office, and had the ultrasound done. They did an abdominal one first, and then a vaginal. The tech asked me what led the doctor to think I needed the study, and I told her. A few minutes later, we were done. I was left alone to change, and told to walk out of the room when ready. When I walked out, I saw her talking to one of the other doctors and heard her discussing my symptoms. I went and sat in the waiting room and waited. A few minutes later a nurse came and asked me to go back into a room, and to wait for a doctor. The doctor came in, and introduced herself. She told me that they did find a fibroid. But, that it was pretty big. At the time, she told me the measurements. I don't know much about centimeters lol. So, to me it's like... umm okay? But then she showed me with her hands, and drew me a picture. Here is what she drew for me:

The bottom part is a uterus, and the top is what she drew to be my fibroid. Once she drew that, it hit me. My eyes got watery, as she discussed my options which she told me were;
1. To let it be, and monitor it (which wouldn't be smart if I am planning to have kids some day, and not really an option because of it's size)
2. Another option was to get a shot called lupron for a few months and see if it shrinks it (which I didnt/dont want to do because of my symptoms which are; severe anemia, irregular bleeding, severe bleeding, pain, discomfort, bloating to the point that I look 3-4 months pregnant, constant urinating)
3. A hysterectomy. Of course I thought hell to the no.
4. Or surgery to try to remove the fibroid. There are 2 procedures, which is a laparoscopy or a myectomy.But, before either to still get the lupron shot to stop the bleeding, get my blood count up (less anemic) and to see if it shrinks my fibroid a bit to make surgery easier.

I came home that day to discuss things with Joe, and my parents, and brother. When I talked to Joe was when it all hit me, and I broke down. He was and has been great through the entire thing. He held me, reassured me that things were in God's hands and that he'll be here during and after everything regardless of what happens. I called my parents, and found out that my mom had the same thing which led to her hysterectomy (there were no options back then) and they supported me in my decision (as well as my bro) which was to have the surgery. Fast forward... to this past weekend (9/17/11) I had an MRI of the abdomen. I called my doctor's office on Monday, and she told me that my fibroid was bigger than measured with the ultrasound, 15 cm to be exact. Which is close to 6 inches wide. With the surgery they're going to try to remove it using the laparoscopic method (recovery time: 2-3 weeks) first, and if they cant do so that way, then they'd do a myectomy (recovery time: 4-6 weeks).

With surgery comes risks, which do worry me, but I am trying to be as positive as I can be. Doc told me that if they cannot control the bleeding during surgery that the option will be to go with the hysterectomy. But, I am praying, and so are my loved ones that, it doesn't have to be that way.

Sighs... There you have it. I will be getting my first shot this week (I had to wait to be on my period, which came today) to get it. I will update talking more about the shot, and how it makes me feel. I included links in this post, to tell you more about the things I touched on, because I didn't know a thing about this before all of this. I want to thank my family for being there for me and checking on me, and to my good friend, whom I don't have to name. And to you, for reading all of this lol. Thank you. Thank you.

* con mucho amor, c i n d y.


HER words said...

Cindy, just reading this made my head spin and I was bombarded with so many emotions. I am truly sorry you have to go through this. It must be such a difficult and yet scary thing to go through. You have such amazing support from Joe, your Family, and friends. You'll be in my prayers sweetie! I hope everything turns out well and that you'll have a speedy recovery. Never lose hope!!!!

ASingleMothersJourney said...

I'm so sorry to hear that you are going through this. I'm emotional reading it so I can only imagine what you're going through. Papsmears are very important to women's health and should be performed at least once a year. I too had a similar experience as you and had to have surgery a few years ago. That's something I kept to myself and basically went through the experience alone but it's great that you have that support because you're going to need it. I pray all goes well treatment and no hysterectomy is needed. I'm only an email away if you to talk. Take care of yourself and best wishes to you.

Miss Esspi ♡ said...

I know you've wondered for a while if you had some kind of condition because of all the symptoms you go through. First of all, I am just so thankful that you got your medical insurance and finally have an answer. Because now you can finally do something about it.

But — I'm still sorry to hear this. Like I KNOW you're going to be okay in the end, but I still wish you didn't have to go through it at all. Thankfully you have your family & Joe's support through it all, and I hope that your friends have come around too. May God be with you during surgery, & that you have the least painful recovery possible. Take care prima XOXO ♥

Anonymous said...

oh my God! I'm going to text you right now.

Jenny said...

Oh man... after reading this entry, I had tears in my eyes. We don't always talk, but you're one of my good friends, and I care a lot about you.

I am sorry that you are going through this right now. But I'm glad that Joe, your parents, and brother are there for you. I'm glad that you received health insurance for you to find out and get help for it. I hope that the surgery goes well. You're in my thoughts!


Anonymous said...

I was so sad reading this. :( I hate the fact that you have to go through tihs! I am seriously sorry that you are going through this right now. I honestly can NOT imagine how your feeling. I have no worries though, I know you are going to be okay in the end. You have a great support system around you with Joe and your parents, and of course your loving blog readers! We are here for you love <3

I don't think I have your number/bbm (if you still have blackberry lol) I'll give you both of mine anyway
Pin: 222A106F
Phone: 954.629.7708
text me so I can save your number :)

Hav BwB said...

I'm really sorry to hear this but you have a great support system and I hope eveything goes well with you :).

love, keys said...

i cannot believe i am JUST seeing this. i am so sorry to hear that your going through this but like you said mama god has everything in his hands nd will take care of you. i can understand the shock you are feeling but everything in time will be taken care of! you have the support of your family and ALL of us <3 love you darling!